So, I’ve had this Blog WordPress site for quite some time. I guess it’s time to use it. Especially since I don’t have too long on this Earth. I’m not complaining, NO! I have had quite a good run with this disease. You see, I was diagnosed with a Liver-Lung disease called Porto-Pulmonary Hypertension. What in Heaven’s sake is that? Portal hypertension is defined as an elevation of hepatic venous pressure. There are many causes, but mine was caused by a Portal Vein that didn’t develop at the time of my birth.
Pulmonary hypertension (PH) is an increase of blood pressure in the pulmonary artery, pulmonary vein, or pulmonary capillaries. It leads to shortness of breath, dizziness, fainting, leg swelling and other symptoms. Pulmonary hypertension can be a severe disease with a marked pulmonary function and heart failure. Normal pulmonary arterial pressure in a person living at sea level has a mean value of 8–20 mm Hg at rest. (Millimeters of Mercury). These pressures are not measured like blood pressure (ie. 120 over 80). Pulmonary hypertension is present when mean pulmonary artery pressure exceeds 25 mm Hg at rest. The readings are most accurate when taken by right heart catheterization.
The IPAH registry from the 1990s showed an untreated median survival of 2–3 years from time of diagnosis, with the cause of death usually being right ventricular failure. A study of patients who had started treatment showed that 89% patients were alive at 2 years. With new therapies, survival rates are increasing. Patients enrolled in The Registry to Evaluate Early and Long-term Pulmonary Arterial Hypertension Disease Management from March 2006 to December 2009, showed the following rates: 1-, 3-, 5-, and 7-year survival rates were 85%, 68%, 57%, and 49%, respectively. (Wikipedia, 2015)
Why am I explaining all of this. My hope is that through our journey together, you might come to see that Heavenly Father and in particular His son Jesus Christ has healed my soul over and over again. Many times even when I know that I didn’t deserve it.
I was diagnosed August 2002. I am still vertical after fourteen years. So, either I have a lot to fix or God doesn’t want me to come home yet. Probably both, I’m sure.